Surviving Myotonic Dystrophy
A Mother’s Struggle to Care for Her Family with a Rare Disease
Failed to add items
Add to basket failed.
Add to wishlist failed.
Remove from wishlist failed.
Adding to library failed
Follow podcast failed
Unfollow podcast failed
£0.00 for first 30 days
Surviving Myotonic Dystrophy
Buy Now for £14.99
No valid payment method on file.
We are sorry. We are not allowed to sell this product with the selected payment method
-
Narrated by:
-
Geri Murray
-
By:
-
Ann S. Woodbury
About this listen
Surviving Myotonic Dystrophy is about Ann S. Woodbury’s struggle to care for her family who have a rare disease - myotonic dystrophy (DM).
Ann’s four children and her husband have DM. In 1998, at the time of the diagnosis, even the doctors didn’t know all of the effects of DM or that it was a brain disorder.
Listening to this book will take you on a journey of understanding this disease and its effects on Ann’s family members.
Ann also includes tips and lessons learned to help parents/caregivers maintain their own health and peace of mind while caring for loved ones.
You will learn:
- DM is a multi-systemic inherited disease that affects just over one in 2,100 people in the US.
- DM is one of the most variable and complicated of the known disorders.
- How isolating it can be to have a family that doesn’t fit in and how you can better cope with this reality.
- What it means to “take care of yourself”.
- Why you should be mindful about interacting with people whose behavior seems different from yours.
Listeners also enjoyed...
