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Patient 1

By: Charlotte Raven,Dr Edward Wild - afterword
Narrated by: Anna Wilson Jones,Dr Ed Wild
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Summary

Brought to you by Penguin.

Charlotte Raven had never heard of Huntington's disease when, in her mid-30s, she discovered that her father was suffering from the illness. Life for her and her young family would never be the same again.

Patient 1 is her brutally candid account of coming to terms with this inherited neurodegenerative disease, which can manifest at any time in life for people who carry the faulty gene. As the illness began to take hold of Raven's body, mind and memory, she began to write. She wrote like her life depended on it - and in many ways she believed it did. Frank and fearless, Patient 1 is an act of self-preservation and a kind of reckoning: with the illness, with the person she once was, with the person she is now.

In an afterword, Raven's doctor, Ed Wild - one of the country's leading experts in Huntington's - explains how doctors and patients like Charlotte are working together in the hope of one day eliminating this disease altogether.

Honest, intelligent and unsentimental, Patient 1 is a startling self-portrait written with wit and vulnerability, and a unique testament to the power of hope in the face of illness.

©2021 Charlotte Raven (P)2021 Penguin Audio

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A must-read for anyone touched by HD

Searingly honest, utterly fascinating, and incredibly informative on a very human level. This is an important book - not much is out there about Huntington’s from a first-person perspective, and it provides a vital degree of insight. I’d recommend this in a heartbeat to anyone who wants to understand not only the disease itself but the person behind it.