For Josh Argall, life couldn’t get much better. He was a 25-year-old first-time father of, Devin, who quickly became the center of Josh’s universe. Josh’s world was rocked when he and Devin’s mother noticed that their three-year-old son was somewhat slow in reaching some of the physical milestones like crawling and walking that are typically associated with children his age. In the months following, Josh’s world changed dramatically as Devin went through numerous doctor visits and misdiagnoses. Finally, a specialist at Children’s Hospital in Milwaukee diagnosed Devin as having Duchenne Muscular Dystrophy, a rare and progressive neuromuscular disease that, at the time, had few treatment options and little hope for a cure or long-term survival. The diagnosis shattered Josh’s world and sent him spiraling into a world of sadness, depression and despair.

On this episode of In Sickness. Men and the Culture of Caregiving, Josh shares how he went from the lowest of the lows to the realization that if his son was going to get better, he needed to face this adversity and join in the effort. Debra Miller, CEO and Founder of CureDuchenne, joins Josh in the discussion and provides valuable insight into the disease, and the patient and caregiver journey. To learn more and find resources related to this episode, go to insickness.org.